Social networks
40,584 7,899 33,216Activities
Entity types
Location
55 Kenosia Ave, Danbury, CT 06810, USA
Danbury
United States of America
Employees
Scale: 51-200
Estimated: 165
Engaged corporates
24Added in Motherbase
5 years, 3 months agoAlone we are rare. Together we are strong.®
The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 330 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services.
NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products.
NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA).
All NORD programs are focused on one ultimate goal -- to improve the lives of individuals and families affected by rare diseases.
NORD is the official sponsor of Rare Disease Day in the US, an observance day held on the last day of February each year worldwide. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseaseday.us.
To learn more please visit the NORD website at www.rarediseases.org. You can also follow NORD on Twitter at @RareDiseases.
rare diseases, patient assistance, patient support, rare disease information, advocacy, information for medical professionals, research, online communities, and orphan diseases
NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
Corporate | Type | Tweets | Articles | |
---|---|---|---|---|
UCB Pharmaceutical Manufacturing | UCB Pharmaceutical Manufacturing | Other 18 Oct 2021 | | |
Leem Startup accelerator & VC, Pharmaceutical Manufacturing | Leem Startup accelerator & VC, Pharmaceutical Manufacturing | Other 28 Feb 2018 | | |
Enel Group Energy, Utilities | Enel Group Energy, Utilities | Other 17 Feb 2023 | | |
Amgen Biotechnology, Biotechnology Research | Amgen Biotechnology, Biotechnology Research | Other 26 Feb 2021 | | |
Greater Paris University Hospitals - AP-HP Health, Hospitals and Health Care | Greater Paris University Hospitals - AP-HP Health, Hospitals and Health Care | Other 25 Sep 2019 | | |
Bristol Myers Squibb Pharmaceutical, Pharmaceutical Manufacturing | Bristol Myers Squibb Pharmaceutical, Pharmaceutical Manufacturing | Other 28 Jun 2022 | | |
AstraZeneca Pharmaceutical, Pharmaceutical Manufacturing | AstraZeneca Pharmaceutical, Pharmaceutical Manufacturing | Other 28 Jun 2022 | | |
Johnson & Johnson Pharmaceutical, Hospitals and Health Care | Johnson & Johnson Pharmaceutical, Hospitals and Health Care | Other 28 Feb 2021 | | |
Novartis Pharmaceutical, Pharmaceutical Manufacturing | Novartis Pharmaceutical, Pharmaceutical Manufacturing | Other 19 Feb 2014 | | |
Moderna Pharmaceutical, Biotechnology, Biotechnology Research | Moderna Pharmaceutical, Biotechnology, Biotechnology Research | Other 26 Feb 2021 | |