Entity
  • National Organization for Rare Disorders

    Created in 1983
  • BETA

    Up & running (A)
    Existing signals show a regular activity
  • Social networks

    40,584 7,899 33,216
  • Activities

  • Entity types

  • Location

    55 Kenosia Ave, Danbury, CT 06810, USA

    Danbury

    United States of America

  • Employees

    Scale: 51-200

    Estimated: 165

  • Engaged corporates

    24
    4 19
  • Added in Motherbase

    5 years, 3 months ago
Description
  • Value proposition

    Alone we are rare. Together we are strong.®

    The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 330 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services.

    NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products.

    NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA).

    All NORD programs are focused on one ultimate goal -- to improve the lives of individuals and families affected by rare diseases.

    NORD is the official sponsor of Rare Disease Day in the US, an observance day held on the last day of February each year worldwide. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseaseday.us.

    To learn more please visit the NORD website at www.rarediseases.org. You can also follow NORD on Twitter at @RareDiseases.

    rare diseases, patient assistance, patient support, rare disease information, advocacy, information for medical professionals, research, online communities, and orphan diseases

  • National Organization for Rare Disorders | NORD

    NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

  • https://rarediseases.org/
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