Afa Crohn RCH France
Created in 1982
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
1,361 347 3,257 44 3,890Activities
Entity types
Location
15 Rue de la Forge Royale, 75011 Paris, France
Paris
France
Employees
Scale: 11-50
Estimated: 30
SIREN
343046132Engaged corporates
35
11 24Added in Motherbase
4 years, 9 months ago
healthtech Value proposition
[Automatic translation follows] The afa is the national association of patients and relatives involved in the fight against Crohn's disease and UC.
The afa is today the only French association, recognized as being of public utility, to focus on Chronic Inflammatory Bowel Diseases (IBD): Crohn's disease and ulcerative colitis.
The association has given itself several missions:
- To heal by supporting basic and clinical research programs, by proposing improvements in the care pathway and by producing knowledge on our diseases or on "living with" them;
- To inform and support patients and their relatives via a network of trained professionals and volunteers spread across 22 regions and our internet tools;
- To share your experience with other patients and their relatives on the internet or during local meetings;
to represent all patients and their relatives, to make their voices heard by political and health decision-makers;
- To train and inform health professionals on daily life with the disease;
- Communicate about our diseases that are still too little known and taboo;
- Act as a public health actor in health democracy.
information, support, research, sharing, training, listening, exchange, acting, and public healthOriginal language
L’afa est l'association nationale de malades et de proches engagés dans la lutte contre la maladie de Crohn et la RCH.
L’afa est aujourd’hui l’unique association française, reconnue d’utilité publique, à se consacrer aux Maladies Inflammatoires Chroniques Intestinales (MICI) : maladie de Crohn et rectocolite hémorragique.
L’association s’est donnée plusieurs missions :
- Guérir en soutenant des programmes de recherche fondamentale et clinique, en proposant des améliorations dans le parcours de soins et en produisant des connaissances sur nos maladies ou sur le "vivre avec" ;
- Informer et soutenir les malades et leurs proches via un réseau de professionnels et de bénévoles formés répartis sur 22 régions et nos outils internet ;
- Partager son expérience avec les autres malades et leurs proches sur internet ou lors de rencontres locales ;
représenter tous les malades ainsi que leurs proches, porter leurs voix auprès des décideurs politiques et de santé ;
- Former et informer les professionnels de santé sur le quotidien avec la maladie ;
- Communiquer sur nos maladies encore beaucoup trop méconnues et tabous ;
- Agir en tant qu'acteur de santé publique dans la démocratie sanitaire.
information, soutien, recherche, partage, formation, écoute, échange, agir, and santé publique
Bienvenue sur la page d'accueil de notre site internet : Afa Crohn RCH
Vous trouverez sur ce site toutes les informations concernant la maladie de Crohn et la RCH, les services et événements proposés par l'afa.
https://www.afa.asso.fr/
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