Association ELA
Created in 1992
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
11,632 2,607Activities
Entity types
Location
2 Rue Mi les Vignes, 54520 Laxou, France
Laxou
France
Employees
Scale: 11-50
Estimated: 41
SIREN
387955917Engaged corporates
28
12 16Added in Motherbase
4 years, 7 months ago
healthtech Value proposition
[Automatic translation follows] Get your employees involved in our connected challenge.
More info: mtbe.ela-asso.com
Founded in 1992 by Guy Alba, the European Leukodystrophy Association (ELA) brings together families who are mobilizing to defeat these rare genetic diseases that affect the nervous system and cause very serious disability situations.
Every week in France, 3 to 6 children are born with these degenerative diseases that gradually lead to the loss of vital functions: sight, hearing, memory, locomotion, etc.
For 29 years, the action led by ELA has made it possible to identify around thirty leukodystrophies, to develop the first treatments, to accompany and support the families concerned on a daily basis.
The fight continues more than ever!
More information: www.ela-asso.com
Leukodystrophy, Fundraising, Research Networking, Awareness, Health, Medical research, Family support, and FundraisingOriginal language
Faites participer vos collaboratrices et collaborateurs à notre challenge connecté.
Plus d'infos : mtbe.ela-asso.com
Fondée en 1992 par Guy Alba, l’Association Européenne contre les Leucodystrophies (ELA) regroupe des familles qui se mobilisent pour vaincre ces maladies génétiques rares qui affectent le système nerveux et qui engendrent des situations de handicap très lourd.
Chaque semaine en France, 3 à 6 enfants naissent atteints de ces maladies dégénératives qui entraînent progressivement la perte des fonctions vitales : la vue, l'ouïe, la mémoire, la locomotion...
Depuis 29 ans, l’action menée par ELA a permis d’identifier une trentaine de leucodystrophies, de mettre au point les premiers traitements, d’accompagner et de soutenir au quotidien les familles concernées.
Le combat continue plus que jamais !
Plus d’informations : www.ela-asso.com
Leucodystrophie, Fundraising, Research Networking, Sensibilisation, Santé, Recherche médicale, Accompagnement des familles, and Collecte de fonds
Mets tes baskets dans l’Entreprise - Association Européenne contre les Leucodystrophies
Participez au challenge solidaire connecté "Mets tes baskets dans l'Entreprise" et faites le plus de pas possible pour les enfants malades.
https://ela-asso.com/mtbe/
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