DG de @FFREpilepsie #sante, #patients #neurologie #esante #philanthropie #générosité #fondations #recherche #neurosciences #fundraising" title="" class="btn" data-container="body" data-html="true" data-id="29560" data-placement="top" data-toggle="popover" data-trigger="focus" style="color:#b3d4fc" tabindex="0" data-original-title="Emmanuelle ROUBERTIE"> 1,464 1,800 1,244
Activities
Entity types
Location
4 Rue Paul Besnard, 92130 Issy-les-Moulineaux, France
Issy-les-Moulineaux
France
Employees
Scale: 2-10
Estimated: 8
Engaged corporates
15Added in Motherbase
6 years ago[Automatic translation follows] Join us to advance research and management of 690,000 patients with epilepsy
Epilepsy affects 600,000 patients in France, making it the second neurological disease behind Alzheimer's disease.
In addition to being a chronic disease, it suffers from a persistent ignorance and prejudice that pose ostracism and fear of the other's gaze on patients.
The missions of the French Foundation for Research on Epilepsy (full -service foundation, recognized as a public utility) are to support patients and their families on a daily basis, to organize information campaigns and events in order to raise funds, to finance innovative research projects, and to act, on behalf of all the actors of epilepsy, to the public authorities for better recognition and knowledge of the epilepsy and the organization of their care.
Epilepsy, neurology, association, charity, patients, research, neurological diseases, actions with regard to public authorities, health, social medico, and communication health
Rejoignez-nous pour faire avancer la recherche et la prise en charge des 690 000 patients souffrant d'épilepsie
L'épilepsie touche 600 000 patients en France, ce qui en fait la deuxième maladie neurologique derrière la maladie d'Alzheimer.
En plus d'être une maladie chronique, elle souffre d'une méconnaissance et de préjugés persistants qui font peser ostracisme et peur du regard de l'autre sur les patients.
Les missions de la Fondation Française pour la Recherche sur l'Epilepsie (Fondation de plein exercice, reconnue d'utilité publique) sont d'accompagner au quotidien les patients et leurs familles, d'organiser des campagnes d'information et des évènements afin de lever des fonds, de financer des projets de recherche innovants, et d'agir, au nom de tous les acteurs de l'épilepsie, auprès des pouvoirs publics pour une meilleure reconnaissance et connaissance de l'épilepsie et l'organisation de leur parcours de soins.
Epilepsie, Neurologie, Association, Caritatif, Patients, Recherche, Maladies neurologiques, Actions vis-à-vis des pouvoirs publics, sante, medico social, and communication sante
FFRE - Fondation Française pour la Recherche sur l'Épilepsie. Retrouvez des infos utiles sur les actions de la FFRE concernant l'épilepsie. Soutenez-nous !
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