French National Rare Disease Registry
Created in 2012
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
662Activities
Entity types
Location
33 Bd de Picpus, 75012 Paris, France
Paris
France
Employees
Scale: 11-50
Estimated: 7
Engaged corporates
17
1 4Added in Motherbase
9 months, 1 week ago
healthtech Value proposition
[Automatic translation follows] The French National Rare Disease Registry is a project managed by the AP-HP (Paris university hospitals) and financed by the French Ministry of Health.
rare diseases, interoperability, Electronic patient record, BaMaRa, Database, AI, data, AP-HP, and data warehouseOriginal language
The French National Rare Disease Registry is a project managed the AP-HP (Paris university hospitals) and financed by the French Ministry of Health.
maladies rares, interopérabilité, Dossier patient informatisé, BaMaRa, Base de données, IA, data, AP-HP, and entrepôt de données
Banque Nationale de Données Maladies Rares
La Banque Nationale de Données Maladies Rares (BNDMR) est un projet prioritaire du Plan National Maladies Rares 2, financé par le ministère de la Santé.
https://www.bndmr.fr/
| Corporate | Type | Tweets | Articles | |
|---|---|---|---|---|
 Illumina Biotechnology, Biotechnology Research | Illumina Biotechnology, Biotechnology Research | Other 30 Nov 2023 | | |
 Takeda Pharmaceutical, Pharmaceutical Manufacturing | Takeda Pharmaceutical, Pharmaceutical Manufacturing | Other 30 Nov 2023 | | |
 Alexion Pharmaceuticals, Inc. Pharmaceutical, Biotechnology, Biotechnology Research | Alexion Pharmaceuticals, Inc. Pharmaceutical, Biotechnology, Biotechnology Research | Other 30 Nov 2023 | | |
 Greater Paris University Hospitals - AP-HP Health, Hospitals and Health Care | Greater Paris University Hospitals - AP-HP Health, Hospitals and Health Care | Other 7 Nov 2024 | | |
 Biogen Biotechnology, Biotechnology Research | Biogen Biotechnology, Biotechnology Research | Other 30 Nov 2023 | | |
 Boehringer Ingelheim Pharmaceutical, Pharmaceutical Manufacturing, Animal Health | Boehringer Ingelheim Pharmaceutical, Pharmaceutical Manufacturing, Animal Health | Other 30 Nov 2023 | | |
 | Haute Autorité de Santé | Other 14 May 2024 | | |