French National Rare Disease Registry
Created in 2012
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
662Activities
Entity types
Location
33 Bd de Picpus, 75012 Paris, France
Paris
France
Employees
Scale: 11-50
Estimated: 7
Engaged corporates
17
1 4Added in Motherbase
9 months, 1 week ago
healthtech Value proposition
[Automatic translation follows] The French National Rare Disease Registry is a project managed by the AP-HP (Paris university hospitals) and financed by the French Ministry of Health.
rare diseases, interoperability, Electronic patient record, BaMaRa, Database, AI, data, AP-HP, and data warehouseOriginal language
The French National Rare Disease Registry is a project managed the AP-HP (Paris university hospitals) and financed by the French Ministry of Health.
maladies rares, interopérabilité, Dossier patient informatisé, BaMaRa, Base de données, IA, data, AP-HP, and entrepôt de données
Banque Nationale de Données Maladies Rares
La Banque Nationale de Données Maladies Rares (BNDMR) est un projet prioritaire du Plan National Maladies Rares 2, financé par le ministère de la Santé.
https://www.bndmr.fr/
| Corporate | Type | Tweets | Articles | |
|---|---|---|---|---|
 CNIL - Commission Nationale de l'Informatique et des Libertés Government Administration | CNIL - Commission Nationale de l'Informatique et des Libertés Government Administration | Other 17 Jun 2024 | | |
 Dia & Co Semiconductors, Retail Apparel and Fashion | Dia & Co Semiconductors, Retail Apparel and Fashion | Other 17 Jun 2024 | | |
 Amgen Biotechnology, Biotechnology Research | Amgen Biotechnology, Biotechnology Research | Other 17 Jun 2024 | | |
 EY Consulting, audit, IT Services and IT Consulting | EY Consulting, audit, IT Services and IT Consulting | Other 17 Jun 2024 | | |
 Inria Research, Research Services | Inria Research, Research Services | Other 10 Jun 2024 | | |
 Vertex Pharmaceuticals Biotechnology, Biotechnology Research | Vertex Pharmaceuticals Biotechnology, Biotechnology Research | Other 7 May 2024 | | |
 France Biotech Startup accelerator & VC, Biotechnology, Biotechnology Research | France Biotech Startup accelerator & VC, Biotechnology, Biotechnology Research | Other 17 Jun 2024 | | |
 Institut Curie Health, Hospitals and Health Care | Institut Curie Health, Hospitals and Health Care | Other 17 Jun 2024 | | |
 Bpifrance Bank, Banking | Bpifrance Bank, Banking | Other 17 Jun 2024 | | |
 | Ministère de la Santé | Other 7 Nov 2024 | | |