Entity
  • French National Rare Disease Registry

    Created in 2012
  • BETA

    Up & running (A)
    Existing signals show a regular activity
  • Social networks

    757
  • Activities

  • Entity types

  • Location

    33 Bd de Picpus, 75012 Paris, France

    Paris

    France

  • Employees

    Scale: 11-50

    Estimated: 7

  • Engaged corporates

    20
    1 5
  • Added in Motherbase

    10 months ago
Description
  • Value proposition

    [Automatic translation follows] The French National Rare Disease Registry is a project managed by the AP-HP (Paris university hospitals) and financed by the French Ministry of Health.

    rare diseases, interoperability, Electronic patient record, BaMaRa, Database, AI, data, AP-HP, and data warehouse

  • Original language

    The French National Rare Disease Registry is a project managed the AP-HP (Paris university hospitals) and financed by the French Ministry of Health.

    maladies rares, interopérabilité, Dossier patient informatisé, BaMaRa, Base de données, IA, data, AP-HP, and entrepôt de données

  • Banque Nationale de Données Maladies Rares

    La Banque Nationale de Données Maladies Rares (BNDMR) est un projet prioritaire du Plan National Maladies Rares 2, financé par le ministère de la Santé.

  • https://www.bndmr.fr/
Corporate interactions BETA
Corporate TypeTweets Articles
Agence du numérique en santé Agence du numérique en santé
Other

22 Nov 2024


numeum
numeum
IT Services and IT Consulting
numeum
IT Services and IT Consulting
Other

22 Nov 2024


Johnson & Johnson
Johnson & Johnson
Pharmaceutical, Hospitals and Health Care
Johnson & Johnson
Pharmaceutical, Hospitals and Health Care
Other

22 Nov 2024


CNIL - Commission Nationale de l'Informatique et des Libertés CNIL - Commission Nationale de l'Informatique et des Libertés
Government Administration
Other

17 Jun 2024


Dia & Co
Dia & Co
Semiconductors, Retail Apparel and Fashion
Dia & Co
Semiconductors, Retail Apparel and Fashion
Other

17 Jun 2024


Amgen
Amgen
Biotechnology, Biotechnology Research
Amgen
Biotechnology, Biotechnology Research
Other

22 Nov 2024


EY
EY
Consulting, audit, IT Services and IT Consulting
EY
Consulting, audit, IT Services and IT Consulting
Other

17 Jun 2024


Inria
Inria
Research, Research Services
Inria
Research, Research Services
Other

10 Jun 2024


Vertex Pharmaceuticals
Vertex Pharmaceuticals
Biotechnology, Biotechnology Research
Vertex Pharmaceuticals
Biotechnology, Biotechnology Research
Other

7 May 2024


France Biotech
France Biotech
Startup accelerator & VC, Biotechnology, Biotechnology Research
France Biotech
Startup accelerator & VC, Biotechnology, Biotechnology Research
Other

17 Jun 2024


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