Value proposition

The only charity in the country exclusively dedicated to providing support for those impacted by Huntington's disease.

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.
The only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.
Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.
We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.
Scottish Huntington’s Association plays a full and active role in attracting the global research community to Scotland to work in partnership with us to improve the lives of families impacted by Huntington’s disease.
Registered with and regulated by the Office of the Scottish Charity Regulator No: SC010985. Scottish Huntington’s Association is a wholly Scottish charity and is registered in Scotland as a company No: 121496.


Symptom management, Emotional support, Carer support, Fundraising, Raising awareness, Services liaison, Financial wellbeing, Specialist support for young people, Family support, 1-2-1 support, Working with families, Advocacy, Campaigns and public engagement, Training and education, Local services, and International influence and connections