EURORDIS-Rare Diseases Europe
Created in 1997
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
31,709 1,342 22,409Activities
Entity types
Location
96 Rue Didot, 75014 Paris, France
Paris
France
Employees
Scale: 11-50
Estimated: 98
Engaged corporates
24
5 14Added in Motherbase
3 years, 3 months ago
biotech Value proposition
Working across borders and diseases to improve the lives of all people living with rare diseases.
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from more than 70 countries that work together to improve the lives of all people living with rare diseases in Europe.
By connecting and mobilising all stakeholders from within and outside the rare disease community, EURORDIS strengthens the voice of people living with rare diseases and shapes research, policies and services.
Our vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no-one behind.
To achieve their full potential, people living with a rare disease need to be:
- recognised as equal citizens with their rights fully respected
- diagnosed timely and accurately
- supported by state-of-the-art medical and social care, or cured
- included in society in all aspects of life and enabled to live independently
Our mission is to work across borders and diseases to improve the lives of all people living with rare diseases.
patient empowerment, European networking of patients, advocacy, policy development, orphan drug policy, and Rare DiseasesOriginal language
Working across borders and diseases to improve the lives of all people living with rare diseases.
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from more than 70 countries that work together to improve the lives of all people living with rare diseases in Europe.
By connecting and mobilising all stakeholders from within and outside the rare disease community, EURORDIS strengthens the voice of people living with rare diseases and shapes research, policies and services.
Our vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no-one behind.
To achieve their full potential, people living with a rare disease need to be:
- recognised as equal citizens with their rights fully respected
- diagnosed timely and accurately
- supported by state-of-the-art medical and social care, or cured
- included in society in all aspects of life and enabled to live independently
Our mission is to work across borders and diseases to improve the lives of all people living with rare diseases.
Home - EURORDIS
https://www.eurordis.org/
| Corporate | Type | Tweets | Articles | |
|---|---|---|---|---|
 Takeda Pharmaceutical, Pharmaceutical Manufacturing | Takeda Pharmaceutical, Pharmaceutical Manufacturing | Other 14 May 2020 16 Feb 2024 | | |
 NHS England Insurance, Hospitals and Health Care | NHS England Insurance, Hospitals and Health Care | Other 13 Feb 2019 | | |
 Biogen Biotechnology, Biotechnology Research | Biogen Biotechnology, Biotechnology Research | Other 15 Feb 2022 | | |
 Sanofi Pharmaceutical, Pharmaceutical Manufacturing | Sanofi Pharmaceutical, Pharmaceutical Manufacturing | Other 17 Feb 2021 | | |