EURORDIS-Rare Diseases Europe
Created in 1997
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
31,709 1,342 22,409Activities
Entity types
Location
96 Rue Didot, 75014 Paris, France
Paris
France
Employees
Scale: 11-50
Estimated: 98
Engaged corporates
24
5 14Added in Motherbase
3 years, 3 months ago
biotech Value proposition
Working across borders and diseases to improve the lives of all people living with rare diseases.
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from more than 70 countries that work together to improve the lives of all people living with rare diseases in Europe.
By connecting and mobilising all stakeholders from within and outside the rare disease community, EURORDIS strengthens the voice of people living with rare diseases and shapes research, policies and services.
Our vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no-one behind.
To achieve their full potential, people living with a rare disease need to be:
- recognised as equal citizens with their rights fully respected
- diagnosed timely and accurately
- supported by state-of-the-art medical and social care, or cured
- included in society in all aspects of life and enabled to live independently
Our mission is to work across borders and diseases to improve the lives of all people living with rare diseases.
patient empowerment, European networking of patients, advocacy, policy development, orphan drug policy, and Rare DiseasesOriginal language
Working across borders and diseases to improve the lives of all people living with rare diseases.
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from more than 70 countries that work together to improve the lives of all people living with rare diseases in Europe.
By connecting and mobilising all stakeholders from within and outside the rare disease community, EURORDIS strengthens the voice of people living with rare diseases and shapes research, policies and services.
Our vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no-one behind.
To achieve their full potential, people living with a rare disease need to be:
- recognised as equal citizens with their rights fully respected
- diagnosed timely and accurately
- supported by state-of-the-art medical and social care, or cured
- included in society in all aspects of life and enabled to live independently
Our mission is to work across borders and diseases to improve the lives of all people living with rare diseases.
Home - EURORDIS
https://www.eurordis.org/
| Corporate | Type | Tweets | Articles | |
|---|---|---|---|---|
 Novo Nordisk Pharmaceutical, Pharmaceutical Manufacturing | Novo Nordisk Pharmaceutical, Pharmaceutical Manufacturing | Other 28 Mar 2023 | | |
 UK Atomic Energy Authority Research, National and local authorities | UK Atomic Energy Authority Research, National and local authorities | Other 28 Feb 2020 | | |
 Eurostat European Union, Environmental Services | Eurostat European Union, Environmental Services | Other 28 Feb 2023 24 Jul 2024 | | |
 European Parliament European Union, Political Organizations | European Parliament European Union, Political Organizations | Other 5 May 2022 19 Mar 2024 | | |
 United Nations Office for Disarmament Affairs International development, International Affairs | United Nations Office for Disarmament Affairs International development, International Affairs | Other 17 Dec 2021 | | |
 Bayer Pharmaceutical, Chemistry, Chemical Manufacturing | Bayer Pharmaceutical, Chemistry, Chemical Manufacturing | Other 25 May 2018 | | |
 Financial Times Media, Newspaper Publishing | Financial Times Media, Newspaper Publishing | Other 28 Feb 2018 | | |
 Novartis Pharmaceutical, Pharmaceutical Manufacturing | Novartis Pharmaceutical, Pharmaceutical Manufacturing | Other 8 May 2020 | | |
 PharmaTimes Media Ltd Pharmaceutical, Pharmaceutical Manufacturing | PharmaTimes Media Ltd Pharmaceutical, Pharmaceutical Manufacturing | Other 12 May 2020 | | |
 OECD - OCDE International development, International Affairs | OECD - OCDE International development, International Affairs | Other 16 Oct 2019 | | |