Social networks
1,896 2,031 2,266Activities
Entity types
Location
Merion Station, PA 19066, USA
Merion Station
United States of America
Employees
Scale: 2-10
Estimated: 16
Engaged corporates
11Added in Motherbase
6 years, 1 month agoFast Breakthroughs for Cystic Fibrosis
Emily's Entourage (EE) is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from existing mutation-targeted therapies. CF is a fatal genetic disease primarily affecting the lungs and digestive system. Founded by Emily Kramer-Golinkoff, a woman with advanced stage CF, and her devoted friends and family, the organization has been featured in national media, including the New York Times, STAT, CNN, People, and more.
Since 2011, Emily’s Entourage has awarded millions of dollars in research grants, launched a now-acquired CF gene therapy company, developed a patient registry and clinical trial matchmaking program to accelerate clinical trial recruitment, and led worldwide efforts to drive high-impact research and drug development. The organization’s work is particularly critical now as revolutionary breakthroughs are available for roughly 90% of the CF population, but those in the outlying 10% that unfortunately do not benefit from these major advances. The work of EE is laser-focused on changing that — and doing it fast, so nobody is left behind
Cystic Fibrosis, Fundraising, Personalized Medicine, Healthcare Improvement, Innovative Drug Therapy, Grant Funding, Clinical Trials, Publications, and Lobbying
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system
Corporate | Type | Tweets | Articles | |
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Amgen Biotechnology, Biotechnology Research | Amgen Biotechnology, Biotechnology Research | Other 1 Mar 2024 | | |
MSD Pharmaceutical, Pharmaceutical Manufacturing | MSD Pharmaceutical, Pharmaceutical Manufacturing | Other 4 Jun 2019 | | |
Moderna Pharmaceutical, Biotechnology, Biotechnology Research | Moderna Pharmaceutical, Biotechnology, Biotechnology Research | Other 29 Oct 2020 | | |
Vertex Pharmaceuticals Biotechnology, Biotechnology Research | Vertex Pharmaceuticals Biotechnology, Biotechnology Research | Other 22 Mar 2022 30 Jul 2024 | | |
Marriott International Hospitality | Marriott International Hospitality | Other 7 Jul 2017 | | |
American Airlines Transport, Airlines and Aviation | American Airlines Transport, Airlines and Aviation | Other 15 Nov 2018 | | |
Intel Corporation IT services, Semiconductors, Semiconductor Manufacturing | Intel Corporation IT services, Semiconductors, Semiconductor Manufacturing | Other 14 Nov 2018 | | |
AbbVie Pharmaceutical, Pharmaceutical Manufacturing | AbbVie Pharmaceutical, Pharmaceutical Manufacturing | Other 26 Nov 2021 15 Sep 2022 | | |
Philips Electricals, Hospitals and Health Care | Philips Electricals, Hospitals and Health Care | Other 17 Nov 2020 | | |
Boehringer Ingelheim Pharmaceutical, Pharmaceutical Manufacturing, Animal Health | Boehringer Ingelheim Pharmaceutical, Pharmaceutical Manufacturing, Animal Health | Other 29 Dec 2021 23 May 2024 | | |