Value proposition

Leading patient advocacy organization working to eliminate the challenges of rare disease. #CareAboutRARE #RareDisease

Empowering the Next Generation Rare Disease Advocate.

Global Genes and RARE-X officially merged into one organization December 2022 under the name Global Genes. Both organizations have been working toward the goal of empowering the next generation advocate both through their individual initiatives and their strategic partnership announced in 2021. In fact, RARE-X was born out of Global Genes after discussions with advocacy leaders, board members, partners, patients, and care partners, addressing a significant gap in access to tools, technology, and infrastructure.

We're Hiring! Check out our open positions at https://globalgenes.org/about-us/career-opportunities/


Rare Disease Awareness, Public and Physician Education, Supporting Research Initiatives, Patient Advocacy, Rare Disease, Undiagnosed Patient Program, Education, Genetics, Events, Programs, Resources, Connect, Empower, Inspire, FoundationAlliances, and CorporateAlliances