AFM-Téléthon
Created in 1958
Up & running (A)
Existing signals show a regular activitySocial networks
139,771 4,228 1,300 193 472 693 74 1,065 1,076 15,839Activities
Entity types
Location
1 Rue de l'internationale, 91000 Ăvry-Courcouronnes, France
Ăvry-Courcouronnes
France
Employees
Scale: 201-500
Estimated: 632
Engaged corporates
109
70 30Added in Motherbase
5 years, 5 months ago
healthtech Value proposition
[Automatic translation follows] Parents' fight, children's life
đ 29 & amp; November 30, 2024
AFM-Téléthon is an association of parents and patients who are tirelessly fighting against genetic, rare and heavily disabling diseases.
âș An association of activists, sick and parents of patients engaged in the fight against rare genetic diseases that kill muscle after muscle, neuromuscular diseases.
âș AFM-Telethon was born from a conviction and a will: to cure diseases long considered incurable. To succeed, it has set itself a golden rule: rigor and efficiency.
âș Within AFM-TĂ©lĂ©thon, volunteers and employees combine to implement a strategy only guided by the interest of patients and the urgency of evolutionary disease.
Three missions: cure (research and development of innovative therapies), help patients (care, support, citizenship), communicate knowledge to families, professionals and the general public.
âș The association is carrying out a strategy of general interest. The scientific, medical and social innovation that it impulses benefits all rare diseases and people with disabilities and advances medicine all.
âș AFM-Telethon is also the Telethon, a unique popular mobilization that brought out the rare diseases of nothingness and enabled a triple genetic, social and medical revolution with the development of biotherapies.Original language
Le combat des parents, la vie des enfants
đ 29 & 30 novembre 2024
LâAFM-TĂ©lĂ©thon est une association de parents et de malades qui mĂšne un combat sans relĂąche contre des maladies gĂ©nĂ©tiques, rares et lourdement invalidantes.
âș Une association de militants, malades et parents de malades engagĂ©s dans le combat contre des maladies gĂ©nĂ©tiques rares qui tuent muscle aprĂšs muscle, les maladies neuromusculaires.
âș LâAFM-TĂ©lĂ©thon est nĂ©e dâune conviction et dâune volontĂ© : guĂ©rir des maladies longtemps considĂ©rĂ©es comme incurables. Pour rĂ©ussir, elle sâest fixĂ© une rĂšgle dâor : la rigueur et lâefficacitĂ©.
âș Au sein de lâAFM-TĂ©lĂ©thon, bĂ©nĂ©voles et salariĂ©s sâallient pour mettre en Ćuvre une stratĂ©gie uniquement guidĂ©e par lâintĂ©rĂȘt des malades et lâurgence de la maladie Ă©volutive.
Trois missions : Guérir (recherche et développement de thérapies innovantes), Aider les malades (soins, accompagnement, citoyenneté), Communiquer les savoirs auprÚs des familles, professionnels et du grand public.
âș LâAssociation mĂšne une stratĂ©gie dâintĂ©rĂȘt gĂ©nĂ©ral. Lâinnovation scientifique, mĂ©dicale et sociale quâelle impulse bĂ©nĂ©ficie Ă lâensemble des maladies rares et des personnes en situation de handicap et fait avancer la mĂ©decine toute entiĂšre.
âș LâAFM-TĂ©lĂ©thon, câest aussi le TĂ©lĂ©thon, une mobilisation populaire unique qui a fait sortir les maladies rares du nĂ©ant et permis une triple rĂ©volution gĂ©nĂ©tique, sociale et mĂ©dicale avec le dĂ©veloppement des biothĂ©rapies.
AFM-Téléthon : innover pour guérir
L'AFM-Téléthon rassemble des familles déterminées à vaincre la maladie et soutient la mise au point de thérapies innovantes pour les maladies rares.
https://www.afm-telethon.fr/fr
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