AFM-Téléthon
Created in 1958
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
139,771 1,300 472 693 74 193 4,228 1,065 1,076 14,372Activities
Entity types
Location
1 Rue de l'internationale, 91000 Ăvry-Courcouronnes, France
Ăvry-Courcouronnes
France
Employees
Scale: 201-500
Estimated: 608
Engaged corporates
99
60 30Added in Motherbase
5Â years ago
healthtech Value proposition
[Automatic translation follows] Parents' fight, children's lives
đ November 29 & 30, 2024
AFM-Telethon is an association of parents and patients who are relentlessly fighting against rare and seriously disabling genetic diseases.
âș An association of activists, patients and parents of patients engaged in the fight against rare genetic diseases that kill muscle after muscle, neuromuscular diseases.
âș AFM-Telethon was born from a conviction and a desire: to cure diseases long considered incurable. To succeed, it has set itself a golden rule: rigor and efficiency.
âș Within AFM-Telethon, volunteers and employees join forces to implement a strategy guided solely by the interest of patients and the urgency of the progressive disease.
Three missions: Healing (research and development of innovative therapies), Helping patients (care, support, citizenship), Communicating knowledge to families, professionals and the general public.
âș The Association pursues a strategy of general interest. The scientific, medical and social innovation that it drives benefits all rare diseases and people with disabilities and advances medicine as a whole.
âș The AFM-Telethon is also the Telethon, a unique popular mobilization that brought rare diseases out of the void and enabled a triple genetic, social and medical revolution with the development of biotherapies.Original language
Le combat des parents, la vie des enfants
đ 29 & 30 novembre 2024
LâAFM-TĂ©lĂ©thon est une association de parents et de malades qui mĂšne un combat sans relĂąche contre des maladies gĂ©nĂ©tiques, rares et lourdement invalidantes.
âș Une association de militants, malades et parents de malades engagĂ©s dans le combat contre des maladies gĂ©nĂ©tiques rares qui tuent muscle aprĂšs muscle, les maladies neuromusculaires.
âș LâAFM-TĂ©lĂ©thon est nĂ©e dâune conviction et dâune volontĂ© : guĂ©rir des maladies longtemps considĂ©rĂ©es comme incurables. Pour rĂ©ussir, elle sâest fixĂ© une rĂšgle dâor : la rigueur et lâefficacitĂ©.
âș Au sein de lâAFM-TĂ©lĂ©thon, bĂ©nĂ©voles et salariĂ©s sâallient pour mettre en Ćuvre une stratĂ©gie uniquement guidĂ©e par lâintĂ©rĂȘt des malades et lâurgence de la maladie Ă©volutive.
Trois missions : Guérir (recherche et développement de thérapies innovantes), Aider les malades (soins, accompagnement, citoyenneté), Communiquer les savoirs auprÚs des familles, professionnels et du grand public.
âș LâAssociation mĂšne une stratĂ©gie dâintĂ©rĂȘt gĂ©nĂ©ral. Lâinnovation scientifique, mĂ©dicale et sociale quâelle impulse bĂ©nĂ©ficie Ă lâensemble des maladies rares et des personnes en situation de handicap et fait avancer la mĂ©decine toute entiĂšre.
âș LâAFM-TĂ©lĂ©thon, câest aussi le TĂ©lĂ©thon, une mobilisation populaire unique qui a fait sortir les maladies rares du nĂ©ant et permis une triple rĂ©volution gĂ©nĂ©tique, sociale et mĂ©dicale avec le dĂ©veloppement des biothĂ©rapies.
AFM-Téléthon : innover pour guérir
L'AFM-Téléthon rassemble des familles déterminées à vaincre la maladie et soutient la mise au point de thérapies innovantes pour les maladies rares.
https://www.afm-telethon.fr/fr
| Corporate | Type | Tweets | Articles | |
|---|---|---|---|---|
 Atlanpole Biotherapies Public business cluster, Biotechnology, French Cluster, Biotechnology Research | Atlanpole Biotherapies Public business cluster, Biotechnology, French Cluster, Biotechnology Research | Other 30 Oct 2024 | | |
 Transdev Transport, Transportation/Trucking/Railroad | Transdev Transport, Transportation/Trucking/Railroad | Other 21 Oct 2024 | | |
 Digital Pharma Lab Pharmaceutical, Health, Business Consulting and Services | Digital Pharma Lab Pharmaceutical, Health, Business Consulting and Services | Other 9 Oct 2024 | | |
 | MinistĂšre des Sports, de la Jeunesse et de la Vie associative | Other 2 Sep 2024 | | |
 | Haute Autorité de Santé | Other 16 Jul 2024 | | |
 | CPME nationale | Other 18 Mar 2024 | | |
 Groupe SAMSIC Real Estate, Business Consulting and Services | Groupe SAMSIC Real Estate, Business Consulting and Services | Other 16 Mar 2024 | | |
 | Agence Régionale de Santé Grand Est | Other 13 Feb 2024 | | |
 Angers Technopole Business Consulting and Services | Angers Technopole Business Consulting and Services | Other 4 Sep 2024 | | |
 INRAE Research, Research Services | INRAE Research, Research Services | Other 16 Jan 2024 | | |